Summer Breaks


It’s the week before graduation. Thing1 and the Big Guy are working together to disassemble a third-hand swing set that has become too tired and worn to allow even the cats to play on. The swing set arrived at the house when we did, when Thing1 was in first grade and Thing2 was on the way. This weekend, both boys are too big to use it, and watching the Big Guy and Thing1 work together as equals to take it apart and clean up the rest of the yard for next weekend is making my eyes sweaty.

Thing1’s on weekly Humira now. The levels still aren’t high enough to make a difference, and he’s using cannabis oil to handle the inflammation. I get to make the odd joke about being mom of the year for getting my kid to use pot (it’s not, it’s hemp), but it is working to a degree. He’s weaning off of Prednisone which isn’t working, still taking Lialda, which isn’t working and waiting for the next blood test to see if we’ll stick with Humira or move on to the next trial-and-error.

And he’s waiting for his life to begin.

Except a funny thing has happened in the last few weeks. In between the phone calls and the daily inquiries into his bowel movements, he’s managed to get to alumni dinners for this year’s grads. He’s helped plan and pull off a senior prank centered around screwing up a parking lot for a day. He’s scheduled a new student orientation day for college.

We don’t know if he’ll be going to college in the fall. We don’t know what his future holds. The reality is, however, even if he weren’t sick, we wouldn’t know that.

Next week his grandparents and aunt will come to see him graduate. We’ll have a small party at home with a burger bar, music and a slide show of the most embarrassing moments of his first 1.78 decades.

It’s been hot the last few days. We all laugh as we realize the snow tires just came off a week or two ago. It’s springing into summer, and, just as quickly, Thing1 will be into his ‘real’ life. He’ll take his Ulcerative Colitis with him. We’ll help him fight for as much as we can for as long as we can, but, in the long run, the bulk of the battle will be his.

Hopefully he’s heading into a long summer, but the nature of his disease is that he will see winter again. Some winters are easy. Others throw a Nor-easter at you every week until you think you’ll throw in the shovel and let the winter bury you. This winter, he learned how to dig.

Because he also learned that, for the people who can and will dig, the winter does end. It always ends.

How to Raise a Parent


Thing2 is sitting across the couch from me right now tapping on an old laptop my parents bequeathed him when they upgraded theirs. He’s working on a project, talking through the lines as he taps and proving I know nothing about parenting.

I’ve worked in some sort of IT for the better part of the last 25 years. I’m the last person to tell a kid they shouldn’t play on a computer, but Thing1 got sucked into Minecraft in middle school, torpedoing his grades for over a year. It’s safe to say, the Big Guy and I are wary of Thing2 acquiring a tech addition.

Thing2 missed a fair amount of school this winter due to severe pain from inflamed lymph nodes. The pain intensified with each bout of flu or strep he contracted in the petrie dish of elementary school, and we were worried he would fall behind.

Most sick days he rested on the couch with an iPad or Harry Potter book while I worked on support tickets. I’d check during the day to make sure his latest YouTube obsession was PG-11, but for most of the day I let him take responsibility for his own amusement. They weren’t my finest parenting hours.

Thing1 got into video games about the same time, solely on the strength of his test scores, that he also got into a middle school accelerated program. He’d coasted through elementary school math, aptitude compensating for apathy. Except for mathy-science stuff, he needed serious prodding to stay on track.

When he started the more challenging program, I asked the program head how I could help him stay more organized. Her answer surprised me.

“I don’t want you to help him. He’ll learn to rise to expectations.”

So we took the hands-off approach. Bad report cards led to loss of privileges, but when he failed, he failed. When he did well, the success was his. That experience guided him like a river winnows out earth and rock to find the best route. It’s helped him learn to stand on his own two feet and, even if he stumbles, to keep trying.

I know telling the world that I let my kid spend two months playing on the iPad is inviting slings and arrows from parenting experts. Left to his own devices, however, Thing2 scurries from couch to boy-cave, moving laundry hampers and draping sheets over his top bunk to create a movie set between naps. The iPad was soon burgeoning with special effects app and ‘screen tests’. By the time he got back to school full time, he had written a script for a Star Wars fan video, complete with a mental cast list consisting of his classmates.

It’s almost Thing2’s turn to apply to that program, and, watching him create and rise to his own expectations, I’m pretty sure we’ll use the same approach. We’ll call it good parenting even though he’ll be doing most of the heavy lifting.

Cold Turkey with a side of Fries

Tomorrow is Another Diet

Most of my diets start out with the best intentions. The night before the diet, I intend to eat the best foods — and by best foods, I mean best tasting, not necessarily best for you — as I think about the foods that will or won’t be on the menu next to the chart of exercises I swear I’ll start on the same day. They usually end about 12 hours later, right about the time I congratulate myself for not hitting the snooze button at 5AM.

Day one of my breakup with solid food was only slightly different. It was Memorial Day. The Big Guy was working, but I wasn’t. I stayed up till three in the morning the night before finishing a novel and managed to sleep in until 8AM when Thing2 — fully apprised of Mommy’s diet plan for the day — came in to see if, like many holiday mornings — I would be exposing them to a balanced American diner breakfast starring sugar, fat, and more sugar. And salt.

“Is this a test?” I asked as I sat up.

Thing2 looked confused for a second and then grinned. “Oh yeah. It’s a test.” Then he disappeared, skipping down the hall to see if he could rope Thing1 into helping me get this diet nonsense out of the way bright and early. He reappeared its the unsurprising news that Thing1, whose autoimmune disorder has redefined dietary discipline over the last year, was uninterested in indulging. He thought I should stick with my plan, Thing2 reported.

“Yeah,” we both said at once.

I ended up getting Thing2 a new box of cereal and mixing my first shake for breakfast. A second shake at noon before Thing1 and I headed to the Kmart closing sale and I was feeling more than a little cocky.

The day was still young.

Shopping trips are usually like a pillow smothering my discipline. Whether I’m manic or depressed, shopping is the rush. Food is the opiate. Even scoring a purely functional $3 swimsuit for Thing1, whetted the appetite for the nearby drive-thru.

But, determined not to disappoint Thing1 who is a model of nutritional maturity, I drove past it.

We got home and promptly retreated to the sectional to enjoy the rest of the day off.

Then I saw a notification on Facebook about a petition that needed signing before Tuesday. I knew grabbing the keys, heading out for a drive to blow off steam that hadn’t had a chance to build up on a day off, would break the straw that broke my diet wagon’s wheels.

I grabbed them anyway.

I was driving to sign the petition. Really. And then I passed by the petitioner’s house. And fifteen minutes later the car pulling into a fast-food parking lot.

I knew I was disappointing Thing1 and Thing2. I knew the Big Guy would forgive. I knew I was disappointing myself and starting the best intentions all over again, the best being there would be a clean slate in the morning.

And still I ordered and indulged.

As I drove home, I debated if I should write about it. Should I tell the truth like a recalcitrant child when I got home? On one hand, why not? It wasn’t as if this was the first time I washed out of a diet. It probably won’t be the last.

Usually, however, this stage of the diet happens in secret. I say nothing and then next day I’m off it. No one says anything or even looks at me disapprovingly. But I know Thing1 worries his mom won’t be around for his college graduation. He worries I won’t be able to hike with him on his eighteenth birthday. I know I have some early signs of pre-diabetes, and the only ‘cure’ is control.

So I decided to be honest. On my blog and when I got home.

“I had fast food,” I said as soon as I got in the door.

“That’s okay,” said the Big Guy.

“I’ll start again,” I said as Thing1 said, “You can just start again. It’s a day off.”

Tonight I’m going through the intentions. I’m back on the wagon before I go to bed, and, with any luck, I’ll stay on tomorrow.

It won’t be the first battle that wasn’t won with a single skirmish.

Strange Territory

The other Friday night, Thing2 had a school dance.  Thing1 went over to SuperGal’s house for a quiet pre-prom night hang out.  The Big Guy went to play music with his traditional music band at the Wayside Country Store. For a few minutes, work was finished, school was out and I was somehow alone.

Then at 6, Thing1 texted he was starting home early, so he and I went to a new food truck discovery in Cambridge, NY. We got back just before the Big Guy finished up his gig. Thing1 went to bed early as he has been these days with his hair-trigger colon still sapping his endurance.  The Big Guy and I suddenly had the giant sectional all to ourselves. I had to keep reminding myself that Thing2 was going a sleep over after the dance since, even with the TV turned up to 50, the silence blared, heralding a new era.

When I started this blog about 6 years ago, Thing1 was just starting to pull at the fraying edges of my apron strings.  This year, despite the needs created by an acute episode of his illness, he’s been shredding the one on his side. What I hadn’t expected — but should have — was that Thing2 would start chewing at his share of the strings at the same time.

I’m wearing my UMass Mom t-shirt as I write this. It’s my new apron. There are no strings on it. Like that apron, it’ll get a few tears on it over the next few years, and, hopefully it will have a companion when Thing2 flies the asylum in a few years.

The geography of our new lifestyle is similar to when we were double-income-no-kids (DINKS) even if the absence of money reminds us that no matter where our kids are, there it is. Still, penniless or not, it feels like we’re entering new territory.

Curating Memory

Between skipping dinners at fancy restaurants and driving themselves rather than the limos featured in every movie about proms in ‘middle class’ America, Thing1’s and SuperGal/SeriousGirlfriend’s prom expenses hover far below the $1000+ average we hear about on the news.

Even the least expensive tux rental, however is a budget buster for us. Last year Thing 1 was tall and broad enough that we altered his dad’s tux down to fit him. This year he’s 60 pounds lighter but still has his prom and hers to go to.

I finally break down and buy him a suit that can go to prom and beyond, but it isn’t just about the money.

The two of them haven’t seen each other much this winter. She was under the weather in April. He’s been trying to have a complete week of school since two days after Christmas. The last week or two, we’ve juggled his medications a few more times. Tonight he has enough energy to drive the two of them in our 20-year-old Volvo wagon.

Her mom and I are feeling unusually normal. We snap as many pictures as we can fit in our phone and camera. The kids smile at us and each other the entire time, exchanging tolerant glances as their moms and dads laugh and cry and wonder aloud where the time went.

SuperGal playfully pretend-jabs Thing1 in the chest when he makes a joke intended to provoke the females.

“Careful,” he laughs. “That’s near my bleeding intestine.”

My antennae go up.

“I thought we were done with this,” I want to say.

He was done with this morning. Now, apparently, it’s back.

I don’t go to bed early on any prom night. Until the key turns in the door, I’ll be mentally replaying every news story of every kid that’s been in a prom-related car accident (even though I’ve been comparatively calm when he drives to work at night through most of the Nor-Easters we had this winter).

This prom night when he walks in the door, I’ll ask him if they had fun. Who did they see? Was the music good? Did you have snacks?

The question that has to come, that has become part of our new normal, will have to wait until morning. Whatever the answer will be, it will not become part of his memory of this night.